AAAF in 2018

I have a confession to make. I’m absolutely nuts about New Year’s Resolutions.

I know, I know – January 1st is just a date, there’s no reason to limit introspection to one tiny portion of the year, and yes, I’ve heard that making resolutions might even be bad for keeping them.

I can’t help it. I really like them.

For me, January really does feel like the designated check in. A chance to look back at what’s been achieved and be excited for what’s ahead. To decide what to bring into the new year and what to leave in the past. Truth is, I’m a big of a day dreamer. If I didn’t give myself a designated time to decided what I want to do and plan how we’re going to do it, I’d end up another year down with nothing to show for it.

A year ago today, we posted AAAF’s New Year Resolutions for 2017. We celebrated the amazing things we did in 2016 – like the Bald Canvas Initiative and our Remove GST on Wigs campaign – and we made plans for what was to come.

Looking back on 2017, I feel very proud of our wonderful team, and our outstanding community, because we achieved everything we set out to do. And so, so much more.

Continue reading “AAAF in 2018”

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My friend, Alopecia

By Allana.

I first met my friend Alopecia at the age of 13. She came by herself, one small patch at the back of my head. She was shy, avoided the limelight, hiding behind my long brown locks, disappearing on her own 12 months later. At the age of 15, Alopecia Areata popped in for a visit, in the shape of two small patches, behind both my ears. Again, quite shy and easily disguised, she left on her own 18 months later.

Alopecia Areata is like a strange aunt, the one that calls in unannounced, makes a mess of the place, eventually leaves but you know she’ll be back.

Continue reading “My friend, Alopecia”

#Healthy Alopecia Blog Competition

As announced in our recent Alopecia Awareness Week, Love Alopeciais running a competition for 12 months in support of our theme for 2018, #HealthyAlopecia, starting December 2017.

We’re looking for your story on any aspect of health and wellness, ranging from mental health, physical activity, social engagement, what wellness means for you, or anything in between. In exchange for your story, you go into the draw to win up to $2000 towards a healthier you!

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AAAdventure Camp 2017

By AAAF President, Chel Campbell

The AAAdventure Camp held during Alopecia Awareness Week was our first attempt at hosting an event for kids from across the nation. It was designed to bring children together from all around Australia to have fun, build friendships and to remove the question on being the only person with Alopecia Areata.  Many of the children had never met another person with Alopecia and the camp a great way in a non-confronting environment to remove this barrier.

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Introducing #HealthyAlopecia

In Alopecia Awareness Week 2016, we began our #EmbraceAlopecia campaign and theme for the year. We’re very proud of the response we’ve had to the campaign to Embrace Alopecia, especially the individuals in our community who came forward to share their stories and personal journeys, many of which can be found here on Love, Alopecia.

12 months later and we want to continue to build on the outstanding success of #EmbraceAlopecia and maintain our dedication to championing awareness and understanding of alopecia, promoting acceptance of appearance diversity and providing support to help individuals find self-confidence and happiness on their journey with this condition. To help us on this path, our theme for 2018 will be Healthy Alopecia.

The Healthy Alopecia theme will structure much of the programs, events and communications executed by AAAF and is to be all inclusive audience program. This campaign will focus on a broad range of health and wellbeing areas, including positive mindsets and mental health, physical excise, empowerment, diet and nutrition, healthy social connectedness and skills to support these areas.

We’re inviting you to take part in Healthy Alopecia too. #HealthyAlopecia

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Announcing Kokoda18

In August 2017, two amazing members of our community, Greg and Tracey, headed to Papua New Guinea to tackle the famous Kokoda Track. This gruelling seven day journey took them through 98km of beautiful and harsh tropical landscape and profound history, as they followed in the footsteps of the ANZACs.

Kokoda17 aimed to champion awareness of Alopecia Areata and to raise much needed funds towards research into this condition. The team raised over $12,000 to support individuals and families whose lives have been changed by Alopecia Areata.

In March 2018, a second team is taking up this challenge, and you’re invited too! Kokoda18 is now recruiting!

Andy, whose wife Amanda has Alopecia Areata, is tackling the Kokoda Trail in March 2018 and we’re looking to recruit fearless adventurers to join him on this journey of a lifetime.

If pushing your boundaries to help support people in need sounds like a challenge you’d be winning to champion, get in touch with us at greg@aaaf.org.au to find out more about being part of the Kokoda18 team. 

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Ask the Experts – Young Adult Perspectives

As you may be aware, earlier this year AAAF was able to send two of our team as representatives to the National Alopecia Areata Foundation Annual Conference in Miami, Florida.

We’ve been able to bring back some fantastic ideas for new projects to bring our community here in Australia, some great information from the Ask the Experts session (find it here), and now are excited to be able to share from a session on a young adults perspectives on living with alopecia.

This session was hosted by an amazing panel of individuals in their early 20’s who have lived with alopecia through their childhood and teens. Individuals in the audience, most of them parents of kids with alopecia themselves, were able to ask questions and seek information based on the panels personal experience.

It was fantastic to see this exchange of information and perspective, but it was also really amazing how many of the questions that were asked were the same as those we receive daily at AAAF. In order to bring the amazing experience of being at the conference with over 600 other people with alopecia, we’ve taken extensive notes from this expert panel to bring to you.

Continue reading “Ask the Experts – Young Adult Perspectives”

Alopecia – Ask the Experts

Two representatives from AAAF were able to attend this year’s National Alopecia Areata Foundation Annual Conference in Miami, Florida. This event is one of the largest gatherings of people with AA in the world, and was a fantastic experience to see and speak with so many people living with condition from all across the world. One of the most attended sessions was an Ask the Experts session, where the AA community got to pitch our questions to a range of alopecia specialists, including researchers, dermatologists, and clinicians. The panel included Richard Long, Gabriela Nero, Maria Hordinsky, Brett King, and Natasha Mesinovska.

Our representatives collected the questions asked in the panel and took notes on the responses to bring them to you.

Continue reading “Alopecia – Ask the Experts”

Living with Alopecia – Linsey’s Story

My alopecia story started when I was a toddler. There are pictures of me with my fine, blonde hair all curly and cute—and then a patch of baldness.

Growing up I had patches on and off.

No one really talked about my bald patches; even my parents were pretty tight-lipped about it. Maybe because a doctor had said, ‘I would just grow out of it’. Well, I didn’t.

When I was twelve, I started to lose my hair in earnest. Continue reading “Living with Alopecia – Linsey’s Story”

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