5 Ways to Manage Stress – Alopecian Edition

Before we begin, there is one thing I want to make absolutely clear: This article isn’t about help you lower stress levels in order to start hair regrowth. It’s about lowering stress levels in order to live happier and healthier.

Alopecia Areata is not caused by stress.

Reducing stress is not a cure for Alopecia Areata. Though some people find that their hair loss seems to be related to their long term mental and emotional states, research into this aspect has found little consistent data. Reducing stress does however assist in overall health improvement, and has been found to assist cardiovascular health, digestion, immune function and even skin appearance. The improvement to mood, sleep patterns, over all productivity and happiness also demonstrate the reducing and managing stress can be a vital step in an overall healthy lifestyle.

Continue reading “5 Ways to Manage Stress – Alopecian Edition”

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Shea on Alopecia Treatments

“It has taken me a really long time to be okay with alopecia being a part of my life. But I still have days when I hate it. When my wig doesn’t go on properly or my eyebrows don’t go on properly or I just want to be like everybody else, to be able to just chuck my hair into a ponytail.”

Shea is one of AAAF’s Support Ambassadors. Here she shares her experiences with treatments for Alopecia Areata and her own personal journey with this condition.

 

*Keep in mind that this video contains some non-graphic discussion of medical procedures. Viewer discretion is advised.

 

Discussion Series: Would you peel the scalp of a two year old?

 

Twenty years ago my journey with Alopecia Areata started.  My son, then 20 months old, had a chicken pox that rested at the hairline on his forehead.  Within days his hair had fallen out and was starting to receded down the center of his scalp.

With no knowledge of the cause and no visible sign of hair regrowth, off we went to the dermatologist.

On inspecting my son, the conclusion was Alopecia Areata. After the general questions probing what that meant, came the question from me “so how do we treat this”.

I’ll never forget the following words.  Continue reading “Discussion Series: Would you peel the scalp of a two year old?”

Power of the bald – Power of me.

This is a struggle for power around accepting this path we are on, and indeed it is a path, not a curse, not a karmic debt or victimization that separates us from others. I see it all as an untying of the knots, a blessing and a valuable lesson on this journey.

We are all born and move through life tying ourselves in knots. Knots are formed through expectations; conditionings, beliefs and they form knots of fear, insecurity, difference and anxiety. We succumb to false identities and ways of being that leave us measuring ourselves against false images of what we should and shouldn’t be.

Continue reading “Power of the bald – Power of me.”

Raising Kids with Alopecia (from ex-kid with Alopecia)

When young kids and teenagers first present with Alopecia Areata, it affects the entire family.

It’s usually a highly emotional, stressful and even scary time. There are so many unknowns with this condition – why it happens, how it might develop, will treatments even work?

That’s why AAAF exists. I’ve spent the last few years involved with the largest Alopecia focused organisation in this country, first as a Youth Ambassador, then Support Ambassador and currently as Secretary. I’ve spoken with dozens of parents and kids trying to come to grips with this new diagnoses, and they’re all asking the same question: What do we do now?

Continue reading “Raising Kids with Alopecia (from ex-kid with Alopecia)”

The Tropical Challenge – Beating the Heat while living with Alopecia

alopecia-and-hot-weather-author-linseyBy Linsey

Living in the tropics and coping with alopecia has been an interesting challenge for me.

I grew up in Indonesia practically on the equator. It was hot, sticky and 100% humidity. When I first got a wig I still had quite a lot of hair on my head— hair that I was not ready to give up on or shave off. I was thirteen and I didn’t want anyone to know I was going bald. I was so ashamed. So I wore my wig on top of my hair, sometimes even to bed. I broke out into heat rash on my head and my face. My skin was not happy and neither was I.

Continue reading “The Tropical Challenge – Beating the Heat while living with Alopecia”

Alopecia as a Fashion Statement

By Gemma

I know what you’re thinking, how can losing my hair (and in my case eyebrows and eyelashes) ever be considered a fashion statement? Young girls are constantly bombarded every day with pictures and videos of women with long flowing effortless-yet-this-actually-took-3hrs-and-20-products-to-do hair, and I could never imagine celebrities like Taylor Swift or Selena Gomez without their iconic hat-rack toppers. Having beautiful hair seems to be one of the biggest fashion accessories in Hollywood, and people without it tend to be looked down on. Hey, look how people talked about Britney Spears’ epic head shaving incident of 2007! Even men are told they must have perfect hair and growing up with my little brother; it seems they take longer than the girls to get their hair ready.

gemma3

So in a world where the ideal hair-do can be narrowed down to a handful styles, how does having no head hair compete with that? Continue reading “Alopecia as a Fashion Statement”

“Alopecian” – A Language Guide

ALOPECIAN
[Pronunciation: al-uh-pee-shee-an]

Noun (Informal): A person who has a form of the hair loss condition known as Alopecia or Alopecia Areata.

Plural: Alopecians

Examples:

  • Alopecian women and girls often have a very different experience with the condition than men and boys, but the common assumption that alopecia is ‘easier’ for males is incorrect.
  • Having been an alopecian for most of my life, I have a very different experience in crowded, public spaces than people who do not have such a visible difference.
  • As an alopecian, I loathe being called an alopecia sufferer.

Continue reading ““Alopecian” – A Language Guide”

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