Alopecia as a Fashion Statement

By Gemma

I know what you’re thinking, how can losing my hair (and in my case eyebrows and eyelashes) ever be considered a fashion statement? Young girls are constantly bombarded every day with pictures and videos of women with long flowing effortless-yet-this-actually-took-3hrs-and-20-products-to-do hair, and I could never imagine celebrities like Taylor Swift or Selena Gomez without their iconic hat-rack toppers. Having beautiful hair seems to be one of the biggest fashion accessories in Hollywood, and people without it tend to be looked down on. Hey, look how people talked about Britney Spears’ epic head shaving incident of 2007! Even men are told they must have perfect hair and growing up with my little brother; it seems they take longer than the girls to get their hair ready.

gemma3

So in a world where the ideal hair-do can be narrowed down to a handful styles, how does having no head hair compete with that? Continue reading “Alopecia as a Fashion Statement”

“Alopecian” – A Language Guide

ALOPECIAN
[Pronunciation: al-uh-pee-shee-an]

Noun (Informal): A person who has a form of the hair loss condition known as Alopecia or Alopecia Areata.

Plural: Alopecians

Examples:

  • Alopecian women and girls often have a very different experience with the condition than men and boys, but the common assumption that alopecia is ‘easier’ for males is incorrect.
  • Having been an alopecian for most of my life, I have a very different experience in crowded, public spaces than people who do not have such a visible difference.
  • As an alopecian, I loathe being called an alopecia sufferer.

Continue reading ““Alopecian” – A Language Guide”

Bald Girl in the Dating World

A reflection of my journey, a bald girl in the dating world.

I am Bianca and I’m 41 and single.
Some time ago I shaved my head and started living my life as a bald woman with Alopecia. The grieving that followed that was indescribable.

Over here in my bubble I assumed I was no longer feminine, I felt ugly.

I looked in the mirror and was mortified at what was looking back at me, I no longer knew who I was. The image I had known as “me” for as long as I can remember was gone and something very different, something very confronting stared back at me. When I went out to bars and clubs, men and women stared at me, in fact whenever I left the house people stared at me. Continue reading “Bald Girl in the Dating World”

Why GST on Wigs Matters To You

If you’ve been paying attention, you may have noticed that AAAF’s social media accounts have been busy with information about GST and wigs, petitions and demonstration rallies. It’s easy to think that taxation on wigs is a tiny issue, only affecting a tiny portion of people, and only having a very small impact on those people. If you don’t wear wigs, you might find yourself thinking why on earth does this matter, and why on earth would it matter to you.

For people with alopecia, the question of Goods and Services Tax on wigs can be, quite literally, a matter of life and death. Continue reading “Why GST on Wigs Matters To You”

Taking the Plunge: Telling people about your Alopecia

There was a time in my life where I would’ve preferred to run 10 km in spandex through Melbourne CBD than tell any of my friends about having Alopecia. Luckily, as I got older, I realised that people probably wouldn’t act like I’d committed a mortal sin for having the audacity to get a chronic illness. It was a process. That being said, I’ve had some amazing experiences and some not as good experiences when telling friends about this condition. Whether you want to tell your whole school, someone at work, or a new friend or partner about your alopecia, it can feel pretty scary. But with the right preparation and the proper tools, it doesn’t have to be. Learn from my mistakes Young Padawan and stock up your arsenal of awareness weapons.  Continue reading “Taking the Plunge: Telling people about your Alopecia”

AAAF’s New Year Resolutions

Happy New Year! We hope you all had enjoyable and safe holiday season and are feeling refreshed and excited for the year ahead.

Before we took our holiday break, we were talking here on Love, Alopecia about all the things AAAF has achieved over the last 12 months. This week it’s all about where we want to go next. That’s right, it’s time for AAAF’s New Year Resolutions. These goals are our commitment to our community that we will never stop striving to do better, be better and help others to have a positive journey with Alopecia Areata. So what’s in store for 2017?

Continue reading “AAAF’s New Year Resolutions”

What NOT to say to someone with Alopecia

gemmaHi, I’m Gemma. I’m 22 years old and I’m a registered nurse. I first lost my hair last year when I was 21 and working at a nursing home. I’d worked at this nursing home for 2 years already so I was well known by all the residents. However, I soon discovered that sometimes elderly people say whatever they want without really thinking about it, which, let’s face it, if I had lived a whole life censoring myself in society, I’d stop trying when I was old too.

One day I was having a particularly emotionally hard day at work, and I decided to write a response to every comment that had been said to me since I started losing my hair, and created this list of things not to say to someone with alopecia.  Continue reading “What NOT to say to someone with Alopecia”

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