Kokoda17 – Greg’s Story

Greg is AAAF’s Branch Manager in Western Australia. Over his many years with AAAF, he’s been a driven and passionate champion of Alopecia Awareness and support for people living with the condition.
His latest project, Kokoda17, is an awareness and fundraising challenge for himself and a team of other dedicated individuals from our community. On Sunday the 13th of August, they begin the journey of a lifetime – tacking the Kokoda Trail in Papua New Guinea. They’re taking on this 97km of rough terrain and poignant history to help improve the lives of people living with Alopecia Areata.

Already this amazing crew had met their first fundraising goal of $10,000 toward support and research into alopecia. They hope to reach the $15,000 mark before they return from this grueling trip. You can help them help kids and families living with alopecia by donating here.

We sat down with Greg during his preparation for this impressive journey, to discuss what inspired the idea and why he took up the challenge.

Continue reading “Kokoda17 – Greg’s Story”

AAAF Goes to NAAFCon2017

With AAAF South Australian Branch Manager Liz Bear.

  1. What’s your connection to Alopecia/AAAF?

I was first diagnosed with AA 34 years ago.  My eldest daughter also has AA as did my paternal grandfather.

  1. Tell us about the NAAF Conference

The NAAF Conference is held annually at various cities in the United States by the the National Alopecia Areata Foundation. People with AA and their families attend from all over the United States and some from Overseas.  This year it will be held in Miami, Florida.  During the 4 day conference, while different session are on during the day for attendees, NAAF organises a children’s camp so children with AA can meet others who are like them.  There can be around 500 attendees. Continue reading “AAAF Goes to NAAFCon2017”

Why GST on Wigs Matters To You

If you’ve been paying attention, you may have noticed that AAAF’s social media accounts have been busy with information about GST and wigs, petitions and demonstration rallies. It’s easy to think that taxation on wigs is a tiny issue, only affecting a tiny portion of people, and only having a very small impact on those people. If you don’t wear wigs, you might find yourself thinking why on earth does this matter, and why on earth would it matter to you.

For people with alopecia, the question of Goods and Services Tax on wigs can be, quite literally, a matter of life and death. Continue reading “Why GST on Wigs Matters To You”

AAAF’s New Year Resolutions

Happy New Year! We hope you all had enjoyable and safe holiday season and are feeling refreshed and excited for the year ahead.

Before we took our holiday break, we were talking here on Love, Alopecia about all the things AAAF has achieved over the last 12 months. This week it’s all about where we want to go next. That’s right, it’s time for AAAF’s New Year Resolutions. These goals are our commitment to our community that we will never stop striving to do better, be better and help others to have a positive journey with Alopecia Areata. So what’s in store for 2017?

Continue reading “AAAF’s New Year Resolutions”

Three Big Reasons to Support Small Charities this Giving Season

The majority of charities are small organisations.

In Australia the official earnings threshold to be classed as a “small” charity is less than $250,000 revenue per year. About two thirds of our registered charities are in this group – and of that, about a third are classed as “very small” and earn less than $50,000.  Only 19% of charities earn over one million per year. Continue reading “Three Big Reasons to Support Small Charities this Giving Season”

Embrace Alopecia

Last week AAAF launched out theme for the next year – Embrace Alopecia. We figure you probably have questions. That’s okay, because we’ve got answers.

So what is a theme and why does AAAF have one?

Every year AAAF’s Committee gets together at our Annual General Meeting to discuss our programs and brainstorm ways we can continue to improve.. For the last few years we’ve developed themes which guide our efforts through the following twelve months. We keep the theme at the core of all projects, campaigns, competitions and events over that year and it informs how we focus on achieving our key missions – improving awareness, funding research and providing support. Continue reading “Embrace Alopecia”

Welcome!

Welcome to Love, Alopecia!

If you’re here, you’re most likely one of the millions of people in the world who make up our alopecian community.

Perhaps someone in your family, maybe your child or partner or sibling, has joined the alopecian tribe.

Maybe you work with someone with alopecia, perhaps as a hairdresser or wigmaker or doctor or psychologist or teacher, and you want to know more about alopecia in order to help them the best you can.

Welcome.  Continue reading “Welcome!”

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