AAAdventure Camp 2017

By AAAF President, Chel Campbell

The AAAdventure Camp held during Alopecia Awareness Week was our first attempt at hosting an event for kids from across the nation. It was designed to bring children together from all around Australia to have fun, build friendships and to remove the question on being the only person with Alopecia Areata.  Many of the children had never met another person with Alopecia and the camp a great way in a non-confronting environment to remove this barrier.

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Introducing #HealthyAlopecia

In Alopecia Awareness Week 2016, we began our #EmbraceAlopecia campaign and theme for the year. We’re very proud of the response we’ve had to the campaign to Embrace Alopecia, especially the individuals in our community who came forward to share their stories and personal journeys, many of which can be found here on Love, Alopecia.

12 months later and we want to continue to build on the outstanding success of #EmbraceAlopecia and maintain our dedication to championing awareness and understanding of alopecia, promoting acceptance of appearance diversity and providing support to help individuals find self-confidence and happiness on their journey with this condition. To help us on this path, our theme for 2018 will be Healthy Alopecia.

The Healthy Alopecia theme will structure much of the programs, events and communications executed by AAAF and is to be all inclusive audience program. This campaign will focus on a broad range of health and wellbeing areas, including positive mindsets and mental health, physical excise, empowerment, diet and nutrition, healthy social connectedness and skills to support these areas.

We’re inviting you to take part in Healthy Alopecia too. #HealthyAlopecia

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Announcing Kokoda18

In August 2017, two amazing members of our community, Greg and Tracey, headed to Papua New Guinea to tackle the famous Kokoda Track. This gruelling seven day journey took them through 98km of beautiful and harsh tropical landscape and profound history, as they followed in the footsteps of the ANZACs.

Kokoda17 aimed to champion awareness of Alopecia Areata and to raise much needed funds towards research into this condition. The team raised over $12,000 to support individuals and families whose lives have been changed by Alopecia Areata.

In March 2018, a second team is taking up this challenge, and you’re invited too! Kokoda18 is now recruiting!

Andy, whose wife Amanda has Alopecia Areata, is tackling the Kokoda Trail in March 2018 and we’re looking to recruit fearless adventurers to join him on this journey of a lifetime.

If pushing your boundaries to help support people in need sounds like a challenge you’d be winning to champion, get in touch with us at greg@aaaf.org.au to find out more about being part of the Kokoda18 team. 

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Living with Alopecia – Linsey’s Story

My alopecia story started when I was a toddler. There are pictures of me with my fine, blonde hair all curly and cute—and then a patch of baldness.

Growing up I had patches on and off.

No one really talked about my bald patches; even my parents were pretty tight-lipped about it. Maybe because a doctor had said, ‘I would just grow out of it’. Well, I didn’t.

When I was twelve, I started to lose my hair in earnest. Continue reading “Living with Alopecia – Linsey’s Story”

Carlo Napolitano

Carlo Napolitano is the newest committee member to join the AAAF team. The former Head Coach of the Italian National Rugby team has had Alopecia Areata almost all of his life and attributes many of his personal successes to his experiences growing up with AA.

“Although it was tough growing up, I never used my Alopecia as an excuse to not achieve. I failed many times but I used the failures as a lesson on how not to do things. With or without hair we are all capable of success. Negative energy creates nothing, positive energy creates champions. Be a champion!!”

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Kokoda17 – Greg’s Story

Greg is AAAF’s Branch Manager in Western Australia. Over his many years with AAAF, he’s been a driven and passionate champion of Alopecia Awareness and support for people living with the condition.
His latest project, Kokoda17, is an awareness and fundraising challenge for himself and a team of other dedicated individuals from our community. On Sunday the 13th of August, they begin the journey of a lifetime – tacking the Kokoda Trail in Papua New Guinea. They’re taking on this 97km of rough terrain and poignant history to help improve the lives of people living with Alopecia Areata.

Already this amazing crew had met their first fundraising goal of $10,000 toward support and research into alopecia. They hope to reach the $15,000 mark before they return from this grueling trip. You can help them help kids and families living with alopecia by donating here.

We sat down with Greg during his preparation for this impressive journey, to discuss what inspired the idea and why he took up the challenge.

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Life with Alopecia – Charlotte’s story

This is a story with lots and up and downs and bumps along the way. This is the story of me with Alopecia. This story all starts in Year 3.

Year 3 was a very up and down year for me. This is where my Alopecia story begins. In about the middle of the year, very close to my birthday, I remember this very specific time when my mum was doing my hair in the morning for school and she saw a little patch. She said to my dad what is this doing here or add least something like that. My parents decided to take me to the doctors. The doctor said don’t worry about it, but my hair kept falling out and it was hard not to worry about it!  My parents decided to see a different doctor about it they recommended that I see a specialist about it. Continue reading “Life with Alopecia – Charlotte’s story”

Power of the bald – Power of me.

This is a struggle for power around accepting this path we are on, and indeed it is a path, not a curse, not a karmic debt or victimization that separates us from others. I see it all as an untying of the knots, a blessing and a valuable lesson on this journey.

We are all born and move through life tying ourselves in knots. Knots are formed through expectations; conditionings, beliefs and they form knots of fear, insecurity, difference and anxiety. We succumb to false identities and ways of being that leave us measuring ourselves against false images of what we should and shouldn’t be.

Continue reading “Power of the bald – Power of me.”

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