Kokoda17 – Greg’s Story

Greg is AAAF’s Branch Manager in Western Australia. Over his many years with AAAF, he’s been a driven and passionate champion of Alopecia Awareness and support for people living with the condition.
His latest project, Kokoda17, is an awareness and fundraising challenge for himself and a team of other dedicated individuals from our community. On Sunday the 13th of August, they begin the journey of a lifetime – tacking the Kokoda Trail in Papua New Guinea. They’re taking on this 97km of rough terrain and poignant history to help improve the lives of people living with Alopecia Areata.

Already this amazing crew had met their first fundraising goal of $10,000 toward support and research into alopecia. They hope to reach the $15,000 mark before they return from this grueling trip. You can help them help kids and families living with alopecia by donating here.

We sat down with Greg during his preparation for this impressive journey, to discuss what inspired the idea and why he took up the challenge.

Continue reading “Kokoda17 – Greg’s Story”

Life with Alopecia – Charlotte’s story

This is a story with lots and up and downs and bumps along the way. This is the story of me with Alopecia. This story all starts in Year 3.

Year 3 was a very up and down year for me. This is where my Alopecia story begins. In about the middle of the year, very close to my birthday, I remember this very specific time when my mum was doing my hair in the morning for school and she saw a little patch. She said to my dad what is this doing here or add least something like that. My parents decided to take me to the doctors. The doctor said don’t worry about it, but my hair kept falling out and it was hard not to worry about it!  My parents decided to see a different doctor about it they recommended that I see a specialist about it. Continue reading “Life with Alopecia – Charlotte’s story”

Power of the bald – Power of me.

This is a struggle for power around accepting this path we are on, and indeed it is a path, not a curse, not a karmic debt or victimization that separates us from others. I see it all as an untying of the knots, a blessing and a valuable lesson on this journey.

We are all born and move through life tying ourselves in knots. Knots are formed through expectations; conditionings, beliefs and they form knots of fear, insecurity, difference and anxiety. We succumb to false identities and ways of being that leave us measuring ourselves against false images of what we should and shouldn’t be.

Continue reading “Power of the bald – Power of me.”

Alopecia as a Fashion Statement

By Gemma

I know what you’re thinking, how can losing my hair (and in my case eyebrows and eyelashes) ever be considered a fashion statement? Young girls are constantly bombarded every day with pictures and videos of women with long flowing effortless-yet-this-actually-took-3hrs-and-20-products-to-do hair, and I could never imagine celebrities like Taylor Swift or Selena Gomez without their iconic hat-rack toppers. Having beautiful hair seems to be one of the biggest fashion accessories in Hollywood, and people without it tend to be looked down on. Hey, look how people talked about Britney Spears’ epic head shaving incident of 2007! Even men are told they must have perfect hair and growing up with my little brother; it seems they take longer than the girls to get their hair ready.

gemma3

So in a world where the ideal hair-do can be narrowed down to a handful styles, how does having no head hair compete with that? Continue reading “Alopecia as a Fashion Statement”

Bald Girl in the Dating World

A reflection of my journey, a bald girl in the dating world.

I am Bianca and I’m 41 and single.
Some time ago I shaved my head and started living my life as a bald woman with Alopecia. The grieving that followed that was indescribable.

Over here in my bubble I assumed I was no longer feminine, I felt ugly.

I looked in the mirror and was mortified at what was looking back at me, I no longer knew who I was. The image I had known as “me” for as long as I can remember was gone and something very different, something very confronting stared back at me. When I went out to bars and clubs, men and women stared at me, in fact whenever I left the house people stared at me. Continue reading “Bald Girl in the Dating World”

Taking the Plunge: Telling people about your Alopecia

There was a time in my life where I would’ve preferred to run 10 km in spandex through Melbourne CBD than tell any of my friends about having Alopecia. Luckily, as I got older, I realised that people probably wouldn’t act like I’d committed a mortal sin for having the audacity to get a chronic illness. It was a process. That being said, I’ve had some amazing experiences and some not as good experiences when telling friends about this condition. Whether you want to tell your whole school, someone at work, or a new friend or partner about your alopecia, it can feel pretty scary. But with the right preparation and the proper tools, it doesn’t have to be. Learn from my mistakes Young Padawan and stock up your arsenal of awareness weapons.  Continue reading “Taking the Plunge: Telling people about your Alopecia”

Embrace Alopecia

Last week AAAF launched out theme for the next year – Embrace Alopecia. We figure you probably have questions. That’s okay, because we’ve got answers.

So what is a theme and why does AAAF have one?

Every year AAAF’s Committee gets together at our Annual General Meeting to discuss our programs and brainstorm ways we can continue to improve.. For the last few years we’ve developed themes which guide our efforts through the following twelve months. We keep the theme at the core of all projects, campaigns, competitions and events over that year and it informs how we focus on achieving our key missions – improving awareness, funding research and providing support. Continue reading “Embrace Alopecia”

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