On Puzzles

Everybody you meet has a puzzle.

Your puzzle is different to mine. Mine is different to yours. Mine may be really big and overwhelming and complicated. Yours may be small and for the most part simple, or vice versa.

These puzzles represent our emotional, mental and physical selves. Your wants and needs to survive. Your situation. Your history. Your future path.

It is your puzzle and yours alone.

 

For a really long time, I have tried to solve other people’s puzzles. Continue reading “On Puzzles”

5 Ways to Manage Stress – Alopecian Edition

Before we begin, there is one thing I want to make absolutely clear: This article isn’t about help you lower stress levels in order to start hair regrowth. It’s about lowering stress levels in order to live happier and healthier.

Alopecia Areata is not caused by stress.

Reducing stress is not a cure for Alopecia Areata. Though some people find that their hair loss seems to be related to their long term mental and emotional states, research into this aspect has found little consistent data. Reducing stress does however assist in overall health improvement, and has been found to assist cardiovascular health, digestion, immune function and even skin appearance. The improvement to mood, sleep patterns, over all productivity and happiness also demonstrate the reducing and managing stress can be a vital step in an overall healthy lifestyle.

Continue reading “5 Ways to Manage Stress – Alopecian Edition”

Raising Kids with Alopecia (from ex-kid with Alopecia)

When young kids and teenagers first present with Alopecia Areata, it affects the entire family.

It’s usually a highly emotional, stressful and even scary time. There are so many unknowns with this condition – why it happens, how it might develop, will treatments even work?

That’s why AAAF exists. I’ve spent the last few years involved with the largest Alopecia focused organisation in this country, first as a Youth Ambassador, then Support Ambassador and currently as Secretary. I’ve spoken with dozens of parents and kids trying to come to grips with this new diagnoses, and they’re all asking the same question: What do we do now?

Continue reading “Raising Kids with Alopecia (from ex-kid with Alopecia)”

The Tropical Challenge – Beating the Heat while living with Alopecia

alopecia-and-hot-weather-author-linseyBy Linsey

Living in the tropics and coping with alopecia has been an interesting challenge for me.

I grew up in Indonesia practically on the equator. It was hot, sticky and 100% humidity. When I first got a wig I still had quite a lot of hair on my head— hair that I was not ready to give up on or shave off. I was thirteen and I didn’t want anyone to know I was going bald. I was so ashamed. So I wore my wig on top of my hair, sometimes even to bed. I broke out into heat rash on my head and my face. My skin was not happy and neither was I.

Continue reading “The Tropical Challenge – Beating the Heat while living with Alopecia”

Bald Girl in the Dating World

A reflection of my journey, a bald girl in the dating world.

I am Bianca and I’m 41 and single.
Some time ago I shaved my head and started living my life as a bald woman with Alopecia. The grieving that followed that was indescribable.

Over here in my bubble I assumed I was no longer feminine, I felt ugly.

I looked in the mirror and was mortified at what was looking back at me, I no longer knew who I was. The image I had known as “me” for as long as I can remember was gone and something very different, something very confronting stared back at me. When I went out to bars and clubs, men and women stared at me, in fact whenever I left the house people stared at me. Continue reading “Bald Girl in the Dating World”

Taking the Plunge: Telling people about your Alopecia

There was a time in my life where I would’ve preferred to run 10 km in spandex through Melbourne CBD than tell any of my friends about having Alopecia. Luckily, as I got older, I realised that people probably wouldn’t act like I’d committed a mortal sin for having the audacity to get a chronic illness. It was a process. That being said, I’ve had some amazing experiences and some not as good experiences when telling friends about this condition. Whether you want to tell your whole school, someone at work, or a new friend or partner about your alopecia, it can feel pretty scary. But with the right preparation and the proper tools, it doesn’t have to be. Learn from my mistakes Young Padawan and stock up your arsenal of awareness weapons.  Continue reading “Taking the Plunge: Telling people about your Alopecia”

What NOT to say to someone with Alopecia

gemmaHi, I’m Gemma. I’m 22 years old and I’m a registered nurse. I first lost my hair last year when I was 21 and working at a nursing home. I’d worked at this nursing home for 2 years already so I was well known by all the residents. However, I soon discovered that sometimes elderly people say whatever they want without really thinking about it, which, let’s face it, if I had lived a whole life censoring myself in society, I’d stop trying when I was old too.

One day I was having a particularly emotionally hard day at work, and I decided to write a response to every comment that had been said to me since I started losing my hair, and created this list of things not to say to someone with alopecia.  Continue reading “What NOT to say to someone with Alopecia”

Beyond Brows – A Guide to Universalis

Alopecia Areata is never a smooth ride, but for those living with total or near total hair loss to the whole body (called Alopecia Areata Universalis) the condition can have extra hurdles. The loss of brows and lashes can be a blow to self-image and greatly effect self-esteem and confidence. Fortunately, there are many guides out there for how to manage these appearance issues with through makeup.   But body hair has a range of functions beyond appearance, and many alopecians find themselves surprised and unprepared for the ways universalis can affect them.

Never fear, my friends. Love, Alopecia has got your back. Drawing on many years of experience managing the weird, wonderful and oft overlooked side effects of all over hairlessness, we’ve created this super convenient list to help you, whether you’re new to the AU experience or an experienced veteran. Continue reading “Beyond Brows – A Guide to Universalis”

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