Isabella’s Alopecia Story

My Name is Isabella. I am 9 years old. I have had Alopecia since I was 3.

I was born with a birth defect called Gastroschisis. This means my organs were outside of my body when I was born and I needed surgery right away to save me.

I have a poor immune system because of this and Hair loss has become one of my main symptoms of this. I see my dermatologist every 3 months. I am currently on different medications to help supress my immune system to help my hair grow which has really helped me.

Sometimes I feel really sad. My Drs think I might be developing LUPUS and I have blood tests once a month. At the moment they can only help with me treat the side affect until we can confirm my diagnosis.  I am tired of having blood tests and taking tablets. 

I always loved Dancing, Dancing makes me feel so happy even if my body is tired. I started Cheer this year. It is fast, and so much fun. I am learning to tumble and have made a lot of friends.

Thank you for reading my story.

In November, Isabella was able to finally compete with her team last weekend at her very first dance competition. Here Mum wrote:

Out of 15 teams competing her team came in 2nd. As I was not allowed in the warm up area her Coach had to take photos for me which I am yet to get form her so once I have gotten these I will forward them on .:)

You can see on her face how much dance just lights her up in every single way. I watched with tears rolling down my face.

Her current treatments are working so well for her we have been able to stop her Chemo after 6 long months and her hair growth is just amazing, We are not at the stage yet where she can braid and do her hair like her friends.

However we can comfortably do low pony tails and where she was completely bald has now tuned into a beautiful fringe.

Isabella is a recipient of the AAAF Sponsorship Program which has allowed her to pursue her dancing (see images below). For more information about the sponsorship program click here.

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