Isabella’s Alopecia Story

My name is Isabella. I am 9 years old. I have had Alopecia since I was 3. 

I was born with a birth defect called gastroschisis. This means my organs were outside of my body when I was born and I needed surgery right away to save me

I have a poor immune system because of this and hair loss has become one of my main symptoms of it. I see my dermatologist every three months. I’m currently on different medications to help suppress my immune system and be able to grow my hair, which has been really good for me. 

Sometimes I feel really sad. My doctors think I might be developing Lupus and I have blood tests once a month. At the moment they can only help me treat the side effects until we can confirm my diagnosis. I am tired of having blood tests and taking tablets. 

I have always loved dancing. It makes me feel so happy even if my body is tired.

I started cheering this year. It is fast and so much fun. I am learning to tumble and have made a lot of friends. 

Thank you so much for reading me. 

Isabella

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