365 Days of Bravery. 

365 days ago I was diagnosed with alopecia. Now, from head to toe I am completely bald and that is okay because I am brave.

You could ask a thousand people who suffer from Alopecia what it is like living with it and I can guarantee each and every one of them will give you a different answer.  My answer, heart breaking.

My alopecia is something me and my family handled head on with no warning or knowledge and without them I do not think I would have made it this far in my journey.  Everything I do and the way I am able to hold myself, I owe to the support my family gave me.

Alopecia is my disease, but it is my families journey.

Continue reading “365 Days of Bravery. “

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Finding Balance with Alopecia

By Linsey Painter

I’m thirty-five years old and I’ve had alopecia in its various forms all of my life. Yet these past two years have been the healthiest I’ve ever experienced with alopecia.

My idea of healthy alopecia has to do with my whole being.

Healthy on the OutsideLinsey HA (1)

 When people see me with a scarf on my head—or just my bald head—most immediately jump to the conclusion that I am sick. I’m sure you know what I’m talking about.

So when I’m doing the Red Arrow walk in Cairns or bike riding with my two boys to school I often get surprised looks.

Exercising can be hot, sweaty business and taking off my cap is the fastest way for me to cool down. I’ve found that while I’m chugging up the steep path and stairs on the Red Arrow with my cap on people usually ignore me, they’re in their own little world of music and breathing, and let’s face it, just trying to make it to the top without falling over.

When I take my cap off all of a sudden I see people’s heads lift and faces break into a smile.

People say, “Hey.”

And suddenly there is a connection.

It makes me feel good to know that people see me as a healthy individual. I don’t have hair and yet I’m obviously not sick either.

Continue reading “Finding Balance with Alopecia”

AAAF in 2018

I have a confession to make. I’m absolutely nuts about New Year’s Resolutions.

I know, I know – January 1st is just a date, there’s no reason to limit introspection to one tiny portion of the year, and yes, I’ve heard that making resolutions might even be bad for keeping them.

I can’t help it. I really like them.

For me, January really does feel like the designated check in. A chance to look back at what’s been achieved and be excited for what’s ahead. To decide what to bring into the new year and what to leave in the past. Truth is, I’m a big of a day dreamer. If I didn’t give myself a designated time to decided what I want to do and plan how we’re going to do it, I’d end up another year down with nothing to show for it.

A year ago today, we posted AAAF’s New Year Resolutions for 2017. We celebrated the amazing things we did in 2016 – like the Bald Canvas Initiative and our Remove GST on Wigs campaign – and we made plans for what was to come.

Looking back on 2017, I feel very proud of our wonderful team, and our outstanding community, because we achieved everything we set out to do. And so, so much more.

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Being a Mum with Alopecia

By Shea

When I got pregnant with my first baby I remember being so excited. Would it be a girl or a boy? Would she love to dance or would he play football? When we found out we were having a girl I was ecstatic! Being a dance teacher all I could think was the gorgeous little tutus I’d be able to dress her up in.

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But after all the excitement had subsided I started to think about my life as a little girl and how it was all rainbows and fairies. I started to think about when I lost my hair and how hard things were for me going through school and being bullied. Would my beautiful baby girl have to go through these things? Had I passed this horrible condition on to her?

Continue reading “Being a Mum with Alopecia”

My friend, Alopecia

By Allana.

I first met my friend Alopecia at the age of 13. She came by herself, one small patch at the back of my head. She was shy, avoided the limelight, hiding behind my long brown locks, disappearing on her own 12 months later. At the age of 15, Alopecia Areata popped in for a visit, in the shape of two small patches, behind both my ears. Again, quite shy and easily disguised, she left on her own 18 months later.

Alopecia Areata is like a strange aunt, the one that calls in unannounced, makes a mess of the place, eventually leaves but you know she’ll be back.

Continue reading “My friend, Alopecia”

#Healthy Alopecia Blog Competition

As announced in our recent Alopecia Awareness Week, Love Alopeciais running a competition for 12 months in support of our theme for 2018, #HealthyAlopecia, starting December 2017.

We’re looking for your story on any aspect of health and wellness, ranging from mental health, physical activity, social engagement, what wellness means for you, or anything in between. In exchange for your story, you go into the draw to win up to $2000 towards a healthier you!

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AAAdventure Camp 2017

By AAAF President, Chel Campbell

The AAAdventure Camp held during Alopecia Awareness Week was our first attempt at hosting an event for kids from across the nation. It was designed to bring children together from all around Australia to have fun, build friendships and to remove the question on being the only person with Alopecia Areata.  Many of the children had never met another person with Alopecia and the camp a great way in a non-confronting environment to remove this barrier.

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Introducing #HealthyAlopecia

In Alopecia Awareness Week 2016, we began our #EmbraceAlopecia campaign and theme for the year. We’re very proud of the response we’ve had to the campaign to Embrace Alopecia, especially the individuals in our community who came forward to share their stories and personal journeys, many of which can be found here on Love, Alopecia.

12 months later and we want to continue to build on the outstanding success of #EmbraceAlopecia and maintain our dedication to championing awareness and understanding of alopecia, promoting acceptance of appearance diversity and providing support to help individuals find self-confidence and happiness on their journey with this condition. To help us on this path, our theme for 2018 will be Healthy Alopecia.

The Healthy Alopecia theme will structure much of the programs, events and communications executed by AAAF and is to be all inclusive audience program. This campaign will focus on a broad range of health and wellbeing areas, including positive mindsets and mental health, physical excise, empowerment, diet and nutrition, healthy social connectedness and skills to support these areas.

We’re inviting you to take part in Healthy Alopecia too. #HealthyAlopecia

Continue reading “Introducing #HealthyAlopecia”

Announcing Kokoda18

In August 2017, two amazing members of our community, Greg and Tracey, headed to Papua New Guinea to tackle the famous Kokoda Track. This gruelling seven day journey took them through 98km of beautiful and harsh tropical landscape and profound history, as they followed in the footsteps of the ANZACs.

Kokoda17 aimed to champion awareness of Alopecia Areata and to raise much needed funds towards research into this condition. The team raised over $12,000 to support individuals and families whose lives have been changed by Alopecia Areata.

In March 2018, a second team is taking up this challenge, and you’re invited too! Kokoda18 is now recruiting!

Andy, whose wife Amanda has Alopecia Areata, is tackling the Kokoda Trail in March 2018 and we’re looking to recruit fearless adventurers to join him on this journey of a lifetime.

If pushing your boundaries to help support people in need sounds like a challenge you’d be winning to champion, get in touch with us at greg@aaaf.org.au to find out more about being part of the Kokoda18 team. 

Continue reading “Announcing Kokoda18”

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